Tag Archives: fibromyalgia

MIA…But with good reasons

My blogging has been horrible lately. It’s not because I haven’t had anything to say or that I haven’t been knitting, it’s that I haven’t been in the best place to have a lot of positive things to write. I was always taught if you don’t have anything nice to say then just keep quiet, and that’s what I have done.

I have gotten what seems like endless not so great news lately. At first I was like ok, then after weeks and weeks of this it became a “what the h3ll, can I get a break” kind of feeling. I will explain what I mean.

I started having leg and muscle pain about the time I was pregnant with Thing 2. Fast forward about a year later and it was discovered I had an auto immune disease. Which one was still unknown. I got the umbrella label of inflammatory arthritis and was given a bunch of meds and sent on my way. Well, that was about a year ago. With in the last few months things have gone down hill. I started having a lot of flares so back to the rhuematologist I went.
She did a full work up and after a ton of tests and x-rays(I was having trouble walking and moving my toes) we came to the conclusion that I have fibromyalgia and what appears to be lupus. Again I was handed a bunch of meds and sent home.
Once home and taking the new meds I soon had a horrible allergic reaction to one of the medications. This is where things started going down hill. I went off the meds right away and the allergic symptoms went away but a slew of other things followed.
I was in and out of doctors for weeks. I was given stuff for the constant nausea and the fevers. Nothing worked.
My final breaking point was when I was taken to the emergency room for such strong stomach pain I literally thought I was dying. I wasn’t far off. At the ER(I was there for 9 hours and only waited for 20 minutes to see a doctor) it was discovered the meds had caused several infections and damaged my liver. I was told to stop all medications by the ER doc and my rhiematologist. I was given a pain med that is easy on you until I can get in to have an endoscopy to make sure my stomach lining hasn’t been damaged.
They said my liver seems to be doing Better since stoping all the other stuff, which is good. I have to have it tested frequently now just to make sure it’s healing.

In all this the only thing that has kept me sane has been knitting. I don’t know what I would do without it. The only problem is without the anti inflammatory medicine I am knitting much slower these days.

So that’s my sad story of why I haven’t been writing much. I am hoping I will be able to get on more often but I can’t make promises.

Hope everyone has a safe and Happy Fourth of July!!